Decision-making around limiting life supporting treatment in neonatal intensive care

Developers: Shaw, 2023

Year of publication: 2023

Date last updated: 7 June 2024

Setting in which the tool was originally developed/validated: Neonatal Intensive Care

Restriction to setting(s): Neonatal Care

Target group: Doctors and parents of critically ill children in neonatal care

Language(s): English

Specific constructs/behaviours:

Critical care decision making, specifically:
1) the first decision point (e.g. who initiated, how initiated)
2) aspects of any subsequent decision point(s)
3) how parents responded.

Tool topics:

Cues and concerns / emotions
Patient perspective–considering, eliciting
Shared decision making
Triadic / family consultations

Intended application: Education, Research

Reference(s) to development/validation paper(s):

Shaw, C., Connabeer, K., Drew, P., Gallagher, K., Aladangady, N., & Marlow, N. (2023). End-of-life decision making between doctors and parents in NICU: The development and assessment of a conversation analysis coding framework. Health Communication, 38(10), 2188-2197.

Reference links:

Tool/manual available: Yes.